IEBF	logo

LINKER

Debra

Familienettet: Dette er et nettsted for alle familier som har barn med nedsatt funksjonsevne enten det dreier seg om barn som har funksjonsvansker, funksjonshemming, psykiske vansker eller kronisk sykdom.

Funksjonshemmedes Fellesorganisasjon (FFO) med sine 70 medlemsorganisasjoner som til sammen har mer enn 325.000 medlemmer, er FFO Norges største paraplyorganisasjon for organisasjoner av funksjonshemmede og kronisk syke.
FFO ble stiftet 21. september 1950. Foruten å bestå av 70 medlemsorganisasjoner er FFO organisert i landets 19 fylker, samt aktiv i rundt 100 kommuner.

Norges Handikapforbund (NHF) er en uavhengig interesseorganisasjon som arbeider for full likestilling og samfunnsdeltakelse for mennesker med funksjonsnedsettelse. Hovedmålgruppen er bevegelseshemmede.

Felleskatalogen: Et oppslagsverk over legemidler på det norske markedet.

Stiftelsen for norske helse- og rehabiliteringsorganisasjoner (Norway)

Socialstyrelsens information om EB

Genderamtoscentrum vid Akademiska sjukhsuet

Hjälpmedelsinstiutet

Socialstyrelsen 
Små og mindre kända handikappgrupper (Sverige) Standardinformasjon om EB, med henvisning til ressurser i Sverige.

Sällsynta diagnoser

Mun-H-Center är ett nationellt orofacialt kunskapscenter

© Epidermolysis Bullosa Medical Research Foundation(EBMRF), is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful  treatments, and ultimately, its cure.
http://www.ebkids.org/

Stanford School of Medicine: 
http://dermatology.stanford.edu/gsdc/eb_clinic/eb-faqs.html

Free Medline access: www.ncbi.nlm.nih.gov/PubMed 

Online Mendelian Inheritance Textbook: www.ncbi.nlm.nih.gov/Omim

American Academy of Dermatology Home Page: www.aad.org

Dermatology Online Atlas: www.dermis.net

Dermatology Image Atlas: www.dermatlas.med.jhmi.edu/derm/The Network

Epidermolysis bullosa (EB) is concerned with the causes, diagnosis, prophylaxis and treatment of EB, a group of inherited skin fragility disorders, which are characterized by trauma induced blisters of the skin and mucous membranes.
http://www.netzwerk-eb.de/e7/index_eng.html


EBnurse: When someone in your family has EB, you need help. This site contains up-to-date and practical information about EB and the treatment and care required to minimize the impact on the individual and family living with this disorder. You can find information and guidance on the many everyday
EB issues and challenges. This site is not only for families, but practitioners, too. http://www.ebnurse.org/

The European Wound Management Association (EWMA) was founded in 1991 to address clinical and scientific issues associated with wound management; represented by medical, nursing, scientific and pharmaceutical interests.
EWMA is an umbrella organisation linking wound management associations across Europe and a multidisciplinary group bringing together individuals and organisations interested in wound care. One of the most important ways EWMA reaches its objectives is by being an educational resource providing travel grants for novice practitioners (for educational purposes), conferences, information and publications on all aspects of wound care.
www.ewma.org/

Søster oganisasjoner i Norden:
Norsk Interessefaggruppe For Sårheling (NIFS): www.nifs-saar.no/

Dansk Selskab for Sårheling (DSFS): www.dsfs.org/

Finnland: www.suomenhaavanhoitoyhdistys.fi/

Island: www.sums-is.org/

Svenskt Sårläkningssällskap: www.sarlakning.se/ 

Sårsjuksköterskor i Sverige (SSiS), är en svensk förening för sjuksköterskor med intresse för sår och sårläkning ur ett professionellt och omvårdnadsvetenskapligt perspektiv: www.swenurse.se/sarsjukskoterskor

EBAN, The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objective:To improve the financial quality and emotional stability of EB families.
http://www.EBANusa.org

EB info world, a lot of subjects concerning EB is covered here; medical information, stories, photos etc. Please note this is a personal homepage
http://www.ebinfoworld.com/

Welcome to the EB Awareness and News group, founded on 2/4/2008. Sister groups are available on MYSPACE, FACEBOOK, YAHOO, CAFEMOM and more at the following URLS:
http://www.myspace.com/ebawareness

http://groups.myspace.com/ebworld

http://www.facebook.com/group.php?gid=16884589256

http://www.cafemom.com/group/6629

http://health.groups.yahoo.com/group/ebnews/

The MAIN Newslist is here:
http://lists.ebinfoworld.com/admindb.cgi/ebnews-ebinfoworld.com

Family Village: a global community of disability-related resources (USA)
http://www.familyvillage.wisc.edu

EBAN: The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objective: To improve the financial quality and emotional stability of EB families.
http://www.ebanusa.org

TOMORROW THINK OF ME is a unique celebration blending music, art, luxury and solidarity - artists and artisans of international caliber - in three of the world's most cosmopolitan cities... Rome, New York City and Toronto. 
The event was conceived by a cadre of three related charities, the Dystrophic Epidermolysis Bullosa Research Associations (DEBRA) of Italy, Canada, and the United States, with the generous pro bono support of Laura Rossi International, a PR agency dedicated to social justice.  Our event's patroness is Eleonora Abbagnato, Prima Ballerina of the Paris Opera.  She is joined by other high-profile patrons, including city mayors and others from around the globe.  www.tomorrowthinkofme.org.   

debra USA National Epidermolysis bullosa awareness -Relay-Rally. This event was endorsed by the
Dystrophic Epidermolysis Bullosa Research Association (DebRA) of America

  eb-clinet                                    
http://www.debra-international.org/med-professionals/eb-clinet.html

 

 

http://www.csh.dk/

 

 

 

 

 

 

 

 

 

 

 

 

 

Funding application:

DEBRA International Research Grant Applications
http://www.debra-international

Nordic Council of Ministers (Nordiska Ministerrådet)
http://www.norden.org/web/sf4-bidrag//sv

Norges Forskningsråd
http://www.forskningsradet.no

Stiftelsen for norske helse- og rehabiliteringsorganisasjoner (Norway)
http://www.extrastiftelsen.no/


Uten særskilt avtale med debra Norge er enhver bruk av bilder som ligger på denne nettsiden ikke tillatt.

(c) 2009 debra Norge

Attend IT